Research-Led Patient Charities Community of Interest

This community served as an important interface between the biopharmaceutical industry and research-led patient organizations and medical research charities

Overview

Traditionally, pharmaceutical companies have worked with research-led patient organizations in a tactical way, for example, to find patients for clinical studies. The Pistoia Alliance set up a dedicated community of interest in recognition that research-led patient organizations would prefer the pharma industry to work with them in a strategic way developing products and supporting clinical studies from the patient (and patient carers/representatives). This approach was identified as being an important way for the pharma industry to engage with research-led patient organizations to determine relevant clinical end-points.

Members of this community authored a paper on ‘Enhancing patient-centric research in biopharma R&D’ which was published in Drug Discovery World.