Core

Research-Led Patient Charities Community of Interest

This community served as an important interface between the biopharmaceutical industry and research-led patient organizations and medical research charities

Overview

Traditionally, pharmaceutical companies have worked with research-led patient organizations in a tactical way, for example, to find patients for clinical studies. The Pistoia Alliance set up a dedicated community of interest in recognition that research-led patient organizations would prefer the pharma industry to work with them in a strategic way developing products and supporting clinical studies from the patient (and patient carers/representatives). This approach was identified as being an important way for the pharma industry to engage with research-led patient organizations to determine relevant clinical end-points.

Members of this community authored a paper on ‘Enhancing patient-centric research in biopharma R&D’ which was published in Drug Discovery World.

Survey

Labs of the Future Global Survey 2025

What will labs of the future look like?

A global survey highlighting the changes in lab technology and development

Read More

Our Events

08 Oct 2025

Enterprise AI Transformation in Life Sciences: Key Questions for R&D Leaders

Book Now
22 Oct 2025

Lab of the Future: 2025 Survey Results

Book Now
23 Oct 2025

From Animal Models to NAMs: AI/ML-Driven Predictive Toxicology

Book Now
28 Oct 2025

AI isn’t the product, the User Experience is

Book Now
04 Nov 2025

European Life Science Informatics Forum – Nordics Chapter

Book Now
04 Nov 2025

FAIR and Data Governance Training Program

Book Now
Boston Bay image Conference 2025
11 Nov 2025

Pistoia Alliance USA Conference 2025

Book Now
11 Dec 2025

UK Life Science Informatics Forum – Christmas 2025

Book Now
19 May 2026

Clinical Trials Technology Congress

Book Now