This community seeks to understand and improve the interface between the biopharmaceutical industry and research-led patient organizations or medical research charities.

Why is this important?

Traditionally pharmaceutical companies work with research-led patient organizations (R-LPOs) in a tactical way, for example, to find patients for clinical studies. R-LPOs would prefer the pharma industry to work with them in a strategic way developing products and supporting clinical studies from the patient (and patient carers/representatives). Such an approach would invite the Pharma industry to engage with R-LPOs to determine relevant clinical end-points.


This community is aligned with our strategic focus on empowering the patient and enabling the voice of the patient to be a pervasive influence in co-designing research and services. 

What will the project achieve?

Members of the community have authored a paper on ‘Enhancing patient-centric research in biopharma R&D’ to be submitted to Drug Discovery Today.



Ready to Get Involved?

There has never been a more important time to collaborate to innovate as an industry! If you would like to find out more about the benefits of Pistoia Alliance membership and how you can get involved with all the different initiatives we run, please send an email to